April 29, 2019
“for Wiggly”
This little dance is very personal to me. It represents these past months.
The room was cold which made my muscles stiff, and that’s also the overall feeling of this year.
But it’s slowly coming to an end. Received a little bit of good news just a second ago so everything is awesome!
Dancing has always been my way to deal with stuff, good or bad.
Movements have power
Movements are my language
April 26, 2019
So, what is going on these days? I called the doctors office on Thursday last week (April 18) to ask about my results of that weeks blood test at the quest diagnostics. Several hours later right before we were going out to eat dinner the nurse I’ve been in contact with these past weeks called me and said that my level had not changed since the previous week. I really thought it was my last Tuesday test, but apparently not. I had to come in and see a doctor on Friday morning.
Jim came with me. I had to give more blood. And then we met with a doctor we hadn’t met with before. She asked if we had any questions. Well, I had many but I basically just asked her to tell us about what was going on cause I don’t wanna trust what I’ve read online, cause a lot of the stuff on the internet isn’t necessarily true and you obviously can’t find information specific to your case. But she told us pretty much everything I had read on my own. It sounded much scarier than just reading about it and Jim, who I don’t think have really read anything, seemed more worried than myself. I have to admit, I had tears coming down my cheeks a few times over the Easter weekend, but it was more from being nervous, not scared, per se.
I had an appointment at the Greenwich hospital on Monday (April 22) to do an ultrasound to see if there is anything left from January or if there was any new growth. They found nothing, yay!! But, the blood test came back with the same number as before:( This morning I had to walk over to quest for another blood test. Right now I’m just waiting for the results from that. Don’t know how quick they can be if results can come back the same day or if anyone will look at it during the weekend or if I have to wait til Monday…
If my level stays the same (or goes higher), then I need to go in for treatment right away. It’s a small version of chemotherapy. That word sounds scary, but I don’t think it will be that bad. It will be a one day thing and possibly a couple of days of side effects and then I’m hopefully ok. If my level doesn’t go down after that, then I have to continue to do blood tests and treatments on weekly basis until it’s down to 0. My level is very very low so I can’t image I have a lot left of this whole thing. If my level would have stopped at a much higher number then I would need a much bigger treatment and it would probably take months. My doctors doesn’t seem too worried and I’m not really worried about it either. Poor my dear family though who I have kept messaging with these days telling them what is going on when I barely know myself. They are good support.
I am going to be fine. I’m not scared, just a little nervous for the side effects. Most of all I’m just annoyed that there is really nothing I can do about all this. I have no control over what is going on. But it is what it is. The good news is that this might just be a one time thing in my life and then I can go on and live a hopefully long life:)
April 22, 2019
Hope you had a wonderful holiday weekend. Can’t say we celebrated Easter really, but we did enjoy being with each other for three days. We wanted to go bowling on Saturday, but everyone else apparently had the same idea, so we skipped it and went for lunch instead haha. We’ve been trying to enjoy the outdoors as much as possible in between rain. Outdoor seating in the sun, walks with Thor, working out at the gym, watching the sunset on the rooftop. An easy and relaxed weekend. I think I needed that, I’ve been very tired lately.
There is some stuff going on right now that I don’t want to talk about just yet (cause we don’t really have any answers yet). Lots of thoughts and emotions this weekend so it was nice to relax and not do much for Easter.
April 17, 2019
Wayfair had some days of extra deals last week, so I decided to order a new desk for my upstairs office. The one already up there is small and I bought it for our first apartment on 44th and 2nd in NYC, a studio apartment with a brick wall outside the window. Perfect for that apartment, still perfect for the next apartment down in Battery Park because I was always busy dancing, rehearsing and performing, I only needed it for blogging. Now I have a big office space/guest bedroom on second floor and I have outgrown my desk.
The desk came yesterday, a week earlier than first estimated (I appreciate that). I lift it up on a cart down in the package room, gave Thor a lift to the apartment, carried it in and went back with the cart with Thor sitting on top. First I thought it was the wrong desk cause it had a different name than what I ordered, but after searching on their website a bit, that was the desk that came up, so I opened it. They did a poor job on gluing it together I guess cause it’s a bit scuffed all way around the top so I wasn’t sure I wanted to keep it. But you know what, I’m not that picky, it’s annoying to send it back plus what do you expect ordering from Wayfair? So when J came home, he helped me first to decide to keep it and then help me carry it up the stairs and I put it together.
It’s wider, taller, it’s white, has two drawers to hide note pads and small shit that looks like clutter. Ya. I’m pretty happy with this. Not the best desk in the world, but it’ll do. Now I have space to plug in my hard drive and phone to the laptop and write in my note books without having to put one thing on the floor when using another hahaha. I can also fit a coffee mug, all my pens and a lamp. I just needed a little bit more space. And I have an awesome chair with it that Jim is jealous of (it’s from Ikea and it really is awesome, best chair ever).
I am all for making life easier. A bigger desk makes it easier for me because I don’t have to decide if I want to write in a note book or write on my computer, I can do both. I have sometimes dread to go sit at my smaller desk because I had no space, so I created a desk on the kitchen bar downstairs instead but every time we are eating I have to put it away and it ends up as a mess on the stairs. Not ideal. So, now I have a desk with two drawers in the office upstairs, that will make it all easier.
Life should be easy, and that’s why I changed a few things when it comes to for example cleaning our home about a year ago. I clean the apartment a little bit every day (most of us probably do), but I do one thing that takes less than 10 minutes at a time and spread it out throughout the day, and then I set off a longer time for a bigger cleaning every now and then. In this way, it’s easy to clean and not a burden. Simplicity makes it easy to live:)
Ok, now it’s time to be creative. Have an awesome day!
April 16, 2019
I went for another blood test this morning, and now I’m really hoping this was the last time, even the nurse that I’m in contact with from my Dr office thinks so. But we’ll see.
It’s been tough to the get up early the past week or so and once I’m up I am still super tired, and same for J. Really hope that we are not getting sick. I would blame the weather for that. Cold, warm, cold, warm. Apparently they had snow (!!) in Chicago this weekend and now I’m hoping that it will stay away from us. Usually the Chicago weather comes to us two-three days later. No more winter please! I’ve had the sniffles since November (since I got pregnant basically) but now it got really worse, can hardly breath, I just want it to be spring and for my nose to clear up!
