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Home again

Fanny Sura21 July, 201921 July, 2019Leave a comment

July 21, 2019

We are back home from our roadtrip. Another amazing weekend with my husband. It has been a very hot hot hot weekend though. At one point my phone said “99°f feels like 109°f”, and it was humid on top of that, my camera and phone got all foggy when we came outside. I liked it but I have to admit that it’s hard to do a lot when it’s so hot:)

The JLo concert was awesome! Some time in the end she got a very long moment of standing ovation and people kept screaming…and she had tears coming down her cheek, but I thought maybe this happens every concert of hers, it’s an act….nope, I don’t think so cause she posted it on her insta-story today. How amazing for her. You could actually feel it, the audience in Philly was awesome and really loved her.

But, ok, more about that tomorrow, now I’m tired and I wanna go to bed. Good Night!

In Philadelphia, Travel

On the road again

Fanny Sura20 July, 201920 July, 2019Leave a comment

July 20, 2019

We are back on the road. This time we are driving south to Philadelphia. We have a hotel booked, tickets for JLo tonight and then we are driving back tomorrow. We have already explored all the tourist stuff here last time we were in Philly (check out the posts HERE) so we’re not sure what we gonna do today. We’ll see. Its gonna be a fun weekend either way.
Hope you’ll have an awesome weekend!

In Uncategorized

Long road ahead

Fanny Sura19 July, 201919 July, 2019Leave a comment

I have slowly gone back to being active again.
After blood tests, chemo, surgery, more blood tests and everything else I decided to give my body a full break to see if that would change anything in my case….it didn’t. All it changed was me going up in clothing sizes and loosing all my muscles🙈
Now I’m slowly getting this weak, stiff and heavier body back to moving again after a few months of basically nothing. I can probably push myself harder but then I also know my body can get injured which isn’t worth it.
It feels like I’m learning everything from scratch again. Puh, it’s tough, but that’s ok😊
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📸 Kauai, January 2018

In Uncategorized

lightnings and thunder

Fanny Sura18 July, 2019Leave a comment

July 18, 2019

Holy baloney, crazy weather here. Yesterday all afternoon and evening we had massive thunderstorms. At one point I was gonna pull up the curtains of the top windows and like 5 lightnings hit right outside my window and the very second after we heard (and felt) a loud thunder. I jumped back and Thor who was on the couch freaked out and wanted to come up in my arms. At night after some massive lightnings in the sky, there was mini lightnings constantly for maybe an hour, the kinds when it just doesn’t stop for even a second. The black night sky was white, I’ve never seen anything like it.
Right now it’s just massive rainfall. Puddles have turned into rivers outside.

We decided on Monday that we will go on another roadtrip this weekend. I have mentioned for a few months now that it would be cool to see Jennifer Lopez live. I’m not really a JLo fan but there are a few artist that would be fun to see because they give a show…it’s not a concert, it’s a show. But the tickets in NYC and NJ has been outrageously expansive so I kinda gave up. And then last weekend we started to look just for fun if she’s having her show somewhere else that could be cheaper. So, on Monday we booked two tickets to her show in Philadelphia. We will drive down in the morning, have the whole day there, concert at night, maybe stay for a few hours the next day or maybe drive somewhere else to explore on our way home. Fun!
Speaking of weather. It is going to be really hot in Philly this weekend. Google weather says now that it will be 36°c degrees (97°f) on Saturday and even hotter on Sunday. Have to make sure we drink lots of water this weekend!

In Partial Molar Pregnancy

noone has a clue

Fanny Sura16 July, 2019Leave a comment

July 16, 2019

Both Jim and I went to quest this morning to get blood tests done. J had a regular doctors check up last week so he needed to do a blood test to see that he has all the vitamins and stuff. I went there for my normal weekly HCG blood test. I still haven’t got my result back from last week…cause noone can find the result. I was on the phone all afternoon yesterday talking to all the different doctors offices trying to figure out where my test had been sent. The front desk at my new doctors office also confirmed yesterday that she has put in orders of hcg blood tests for me for three months from now on, but when I arrived at quest this morning they couldn’t find anything. It was too early to call my doctor so I had to just go home. J got his test done and I have to call my doctor in an hour and see what is going on.
My new doctor is great (and she seems to be one of the best of the best at what she does) but the blood tests situation has been a mess cause papers and results get sent to different people and I have tests done at several places. Puh…so much going on.
I don’t know what I have written here last about my case (and maybe nobody cares..but there might be women out there who are dealing with the same thing so I write more for them), but basically nothing has changed. The test I did on July 1 showed same number as in April and the other super-early-pregnancy-blood-test that I did the same day apparently couldn’t show anything cause my numbers are too low (so that’s a good thing). They put me on birth control pills this month which I at first said no to (cause I always avoid pills and medicines unless I really have to take it, I don’t even take regular pain killers) but she only wanted me to take it for 21 days (one cycle) so I said ok. This is because my level might be a phantom…aka not really real…so if I take these for awhile maybe they can trick my body to understand it is not pregnant and it will lower my level…or something..I don’t really understand everything. It could also have something to do with weird antibodies floating around in my body but we don’t know.
If my level doesn’t go down after taking these pills, I will in a month or two go back for chemo but a different kind than I got before. I really don’t want that of course, especially not during summer cause that would mean I can’t be outside and be exposed to the sun and I have to take Thor out.
To sum it all up… Not only did I have a very rare type of pregnancy, I also have an extremely rare or even unknown case within it. Yay me, I feel so special.