April 26, 2019
So, what is going on these days? I called the doctors office on Thursday last week (April 18) to ask about my results of that weeks blood test at the quest diagnostics. Several hours later right before we were going out to eat dinner the nurse I’ve been in contact with these past weeks called me and said that my level had not changed since the previous week. I really thought it was my last Tuesday test, but apparently not. I had to come in and see a doctor on Friday morning.
Jim came with me. I had to give more blood. And then we met with a doctor we hadn’t met with before. She asked if we had any questions. Well, I had many but I basically just asked her to tell us about what was going on cause I don’t wanna trust what I’ve read online, cause a lot of the stuff on the internet isn’t necessarily true and you obviously can’t find information specific to your case. But she told us pretty much everything I had read on my own. It sounded much scarier than just reading about it and Jim, who I don’t think have really read anything, seemed more worried than myself. I have to admit, I had tears coming down my cheeks a few times over the Easter weekend, but it was more from being nervous, not scared, per se.
I had an appointment at the Greenwich hospital on Monday (April 22) to do an ultrasound to see if there is anything left from January or if there was any new growth. They found nothing, yay!! But, the blood test came back with the same number as before:( This morning I had to walk over to quest for another blood test. Right now I’m just waiting for the results from that. Don’t know how quick they can be if results can come back the same day or if anyone will look at it during the weekend or if I have to wait til Monday…
If my level stays the same (or goes higher), then I need to go in for treatment right away. It’s a small version of chemotherapy. That word sounds scary, but I don’t think it will be that bad. It will be a one day thing and possibly a couple of days of side effects and then I’m hopefully ok. If my level doesn’t go down after that, then I have to continue to do blood tests and treatments on weekly basis until it’s down to 0. My level is very very low so I can’t image I have a lot left of this whole thing. If my level would have stopped at a much higher number then I would need a much bigger treatment and it would probably take months. My doctors doesn’t seem too worried and I’m not really worried about it either. Poor my dear family though who I have kept messaging with these days telling them what is going on when I barely know myself. They are good support.
I am going to be fine. I’m not scared, just a little nervous for the side effects. Most of all I’m just annoyed that there is really nothing I can do about all this. I have no control over what is going on. But it is what it is. The good news is that this might just be a one time thing in my life and then I can go on and live a hopefully long life:)